Resource Links

The following Internet web sites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.

fb88 Cleft Lip and Palate Program- Assisting fb88 families with services and treatment for infants, children and youth with Cleft Lip/Palate
Telephone: (800) 698-3624 in fb88
(207) 287-4802

- National list of support groups

- Information and support for individuals and families dealing with 22q11.2

- Provides information and emotional support for individuals with facial differences and their families by linking people with similar experiences through a Peer Network.
Offers a newsletter and publications.
Telephone: (416) 597-2229 or 1-800-665-FACE

- Online source for education and inspiration

- Operates a 24-hour hotline assisting parents and adult patients with questions about cleft lip and palate and other craniofacial anomalies.  Distributes free educational publications, access feeding support.
Telephone: (800) 24-CLEFT

- WIDE SMILES was formed to ensure that parents of cleft-affected children do not have to feel alone. They offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting.

- An agency for parents, parent organizations and professionals to work together to serve children with disabilities and their families.
Telephone: (800) 870-7746 or (207) 588-1933

Child Development Services (CDS) - The Child Development Services (CDS) system is an Intermediate Educational Unit that provides both Early Intervention (birth - two years) and Free Appropriate Public Education (FAPE for ages three - five years) under the supervision of the fb88 Department of Education.
Call above number for your local CDS site.
Telephone: (207) 624-6660

- Disability Rights Center (DRC) is fb88's protection and advocacy agency for people with disabilities. It is a non-profit agency independent of state and federal government.
160 Capitol St, Suite 4
Augusta, ME 04330
Telephone: (800) 452-1948  (207) 626-2774

- 5210 Tips, suggestions, recipes to help give you the tools to get started on your journey to good health!

- Site designed for parents, children and teens with lots of good advice and activities

– Adopting cleft affected children group website

- Nonprofit that supports, connects, and advocates for persons and families with children affected by cleft and craniofacial conditions in the State of fb88.

Cleft Palate Bottle Web Sites